Standardization of epilepsy educational manuals for Ethiopian students, mothers and teachers (SEEM).
Background: The epilepsy stigma and treatment gap is enormous in Ethiopia. The epilepsy resolution by the world health assembly calls for coordinated country wide action on the health, social and public knowledge. Effective epilepsy education should target to empower people with epilepsy, create school based awareness and cascade public education campaign. This emphasizes the need to develop innovative, collaborative, linguistically and culturally appropriate community epilepsy education manuals tailored to the needs of the target population.
Objective: To develop and standardize epilepsy education manuals for use by mothers and primary students, and to teachers and health extension workers in Ethiopia.
Methods: Collaborative frame work design and processes, using the principles of experience- based co-design, was implemented to improve the quality of the epilepsy education manuals.
Results: The overall feedback from experts and stake holders was very positive. Students, teachers and parents who had participated in the focused group discussion reported a positive view of the epilepsy education manuals. The feedbacks from the study participants were used to develop optimized epilepsy educational manuals for “students and mothers” and “teachers and health extension workers.”
Conclusion: The applied experience based framework design identified the strengths and weaknesses of the draft epilepsy education manuals. This design allowed experts and stake holders to identify improvement priorities and to formulate and employ changes on the draft epilepsy education manuals. Follow up pilot and large scale implementation trails will clarify the potential of the educational manuals to alleviate epilepsy stigma and treatment gap in Ethiopia.
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